E0 ConsensusModerate confidencePEM ?Review-NarrativePeer-reviewedMachine draft
Myalgic encephalomyelitis/chronic fatigue syndrome and the biopsychosocial model: a review of patient harm and distress in the medical encounter.
Geraghty, Keith J, Blease, Charlotte · Disability and rehabilitation · 2019 · DOI
Quick Summary
This review examines why many ME/CFS patients feel harmed or upset after seeing doctors. The researchers found seven main problems: difficulty getting diagnosed, being misdiagnosed with other conditions, trouble accessing medical support, poor quality of care, negative experiences with treatments like cognitive behavioral therapy and exercise programs, doctors not believing patients' descriptions of their illness, and emotional distress. The authors suggest that doctors should listen more carefully to patients and adopt approaches centered on what patients actually experience.
Why It Matters
This study validates patients' documented experiences of medical distress and systematically documents how certain clinical frameworks may cause harm rather than help. It provides evidence-based grounds for questioning current treatment approaches and advocates for clinical practices that better align with patient values and biomedical evidence. For the ME/CFS community, this review supports calls for medical model reform and more respectful, evidence-informed clinical encounters.
Observed Findings
- Seven categories of iatrogenic harm reported by ME/CFS patients: diagnostic delays and misdiagnosis
- Restricted access to sick role, medical care, and social support
- High patient dissatisfaction with medical care quality
- Adverse responses to cognitive behavioral therapy and graded exercise therapy
- Challenges to patient narrative and experiential accounts
- Individual and collective psychological distress
- Divergence between doctor perspectives (biopsychosocial model) and patient preferences (biomedical model)
Inferred Conclusions
- Current biopsychosocial clinical frameworks applied to ME/CFS are too narrow and fail to adequately incorporate patient narrative and biomedical evidence
- Misdiagnosis, conflict, and harm result from incongruence between physician and patient illness models
- Cognitive behavioral therapy and graded exercise therapy are viewed as harmful by many patients and lack sufficient evidence support
- Clinicans should adopt patient-centered approaches that prioritize concordance and validate biological illness mechanisms
What This Study Does Not Prove
This review does not quantify how frequently each type of harm occurs or determine which patients are most vulnerable. It does not establish definitive mechanisms of harm or prove that biopsychosocial approaches cause more damage than no treatment. The narrative methodology cannot definitively separate correlation from causation in complex clinical encounters.
Tags
Symptom:Post-Exertional MalaiseCognitive DysfunctionPainFatigue
Method Flag:PEM Not Defined
Metadata
- DOI
- 10.1080/09638288.2018.1481149
- PMID
- 29929450
- Review status
- Machine draft
- Evidence level
- Established evidence from major reviews, guidelines, or evidence maps
- Last updated
- 8 April 2026