E0 ConsensusHigher confidencePEM ?Review-NarrativePeer-reviewedReviewed
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Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

Grach, Stephanie L, Seltzer, Jaime, Chon, Tony Y et al. · Mayo Clinic proceedings · 2023 · DOI

Quick Summary

This review explains how doctors can diagnose and manage ME/CFS, a serious illness that causes extreme tiredness and other symptoms, often starting after an infection. The authors note that ME/CFS shares many similarities with long COVID, the condition some people experience after having COVID-19. They provide practical guidance to help healthcare providers recognize and treat this condition.

Why It Matters

This guideline is important because it addresses a critical gap in clinical practice by providing generalists with clear diagnostic and management strategies for ME/CFS, a disease often underrecognized or misdiagnosed. Given the substantial overlap with post-COVID syndrome affecting millions of patients, this guidance has broad relevance for improving patient care and reducing diagnostic delays.

Observed Findings

  • Approximately half of patients with post-COVID syndrome meet diagnostic criteria for ME/CFS
  • ME/CFS is frequently preceded by infection
  • ME/CFS is classified as a chronic neurologic disease
  • Significant clinical overlap exists between ME/CFS and post-COVID syndrome

Inferred Conclusions

  • Generalist practitioners need practical frameworks for recognizing and managing ME/CFS
  • Post-COVID syndrome should prompt consideration of ME/CFS diagnostic criteria
  • The overlap between ME/CFS and post-COVID syndrome suggests shared pathophysiologic mechanisms or disease features
  • Improved diagnostic and management strategies are needed for this underrecognized chronic condition

Remaining Questions

  • What are the specific underlying biological mechanisms causing ME/CFS and post-COVID syndrome?
  • Do ME/CFS and post-COVID syndrome represent identical conditions or distinct entities with overlapping features?
  • Which management strategies are most effective for ME/CFS, and what evidence supports current clinical recommendations?
  • How can diagnostic delay and missed diagnoses in ME/CFS be reduced in primary care settings?

What This Study Does Not Prove

This review does not establish new causal mechanisms of ME/CFS or prove the effectiveness of specific treatments through clinical trial data. It does not demonstrate differences between ME/CFS and post-COVID syndrome, only their overlap, and cannot determine whether they represent the same underlying condition.

Topics

Tags

Method Flag:PEM_UNCLEARExploratory OnlyPEM Not Defined
Symptom:Post-Exertional MalaiseCognitive DysfunctionUnrefreshing SleepPainFatigue
Phenotype:Infection-TriggeredLong COVID Overlap

Metadata

DOI
10.1016/j.mayocp.2023.07.032
PMID
37793728
Review status
Editor reviewed
Evidence level
Established evidence from major reviews, guidelines, or evidence maps
Last updated
7 April 2026